Friday, 11 May 2012

Abseiling for M.E.

The following is a guest post written by Rory Singer, and a plug for the abseil he is (bravely!!) doing for ME charity 'The Association of Young People with ME', for ME Awareness Week. Please help out with this cause if you can, and share this post on your social networking sites! :)

Rory on the Beach
Hello, my name is Rory Singer and I am 15 years old, I have had M.E for 6 years. I am assuming you already know what M.E is if you are reading this blog but if you don’t know, M.E is a painful, disabling and isolating illness which affects an estimated 25,000 children and young people across the UK. Symptoms include extreme pain and fatigue in the muscles to the point of collapse, weakened immune systems and severe cognitive problems. (You can read more about it through the links in the 'ME Support & Info section of the right hand column)

Susannah, here at The Thing With Feathers, has ever so kindly let me have a space on her blog as part of M.E awareness week and that’s what I would like to talk to you about. Although it is improving, there is a great need for increased awareness of M.E and what it does, and I think awareness week is a great time for everyone to get involved and do as much as possible to create awareness for a misunderstood illness.

I Support AYME!
I have decided to do a charity abseil. With the support of my sister and a group of my friends, we are all abseiling down the Avon Gorge in Bristol to raise funds for the registered national children’s charity, AYME (The Association of Young People with M.E) (No.1082059) and to spread general awareness of M.E. AYME is dedicated to the emotional and practical support of children and young people with M.E and their families. Membership is free so AYME relies on fundraising events such as ours to keep its vital services running. If you would consider supporting us in our challenge for AYME, we would appreciate anything you are willing to give! Details on how to donate will be at the bottom. :)

Avon Gorge, where Rory and his sister will be abseiling for charity!

Now back to what I was actually talking about, M.E awareness week.

So what, I hear you ask, can I do to help?? Well there are plenty of things you can do, as I am about to show you in the bullet pointed section below. I'm sure you can come up with many more ideas, too!!

  • Shop online!!
    By shopping through this link 3-15% of the cost of your order will be donated automatically to Ayme!

  • Ebay
    Got any old or unwanted items? Sell them on Ebay and donate some of the money to an M.E. charity.

  • The Classic
    Shave your head, legs, eyebrows or (come on boys!) your chest for charity. This is an easy thing to do and its lots of fun and will get lots of people donating!!

So please visit our website at : Just Giving, where you will be able to safely sponsor my abseil! You can donate securely by credit card, Paypal, or even by text (!) - and gift aid is supported. The money goes directly to AYME, through Just Giving.

If you can share the links to this post and to my Just Giving site on Twitter, Facebook, & any other social networking sites you use, that would be amazing! And if you have any questions or just want to say hi, you can find me at @Rorysinger_ayme on Twitter, or on Facebook.

Thanks for reading and again, a massive thanks to Susannah.
Hope to hear from you soon,
Rory Singer

Click this image to expand it to it's full size, to see some of the things people with ME go through.

Susannah's Signature
I'd love to hear your reply and I know it'll be valued by other readers too! I always try to respond, please just be aware that it can take me some time to find the energy to do so as I've been particularly ill recently and struggling to get online. Thanks for reading! :)



  1. Unfortunately I won't be donating to this particular cause, because support for AYME is support for their bad advice and the junk research they support and endorse. They supported the PACE trial and endorse Graded Exercise "Therapy" which is harmful to people with ME. I know some of the work they do (in keeping people with ME in touch with each other) is valuable, but the harm is also considerable. Please consider donating to the Tymes Trust which advocates for children who are being subjected to the harmful treatments AYME endorses, often at the insistence of doctors and social workers.

  2. I do agree with you if I were choosing a charity for myself to donate to, (I most support Tymes & Invest in ME) but I think from Rory's perspective, he is wanting to give back to a charity that made a difference in his own life - and I respect that.

  3. Hi Matt, that's alright I do understand where you are coming from. However the reason I am giving the money to AYME this year is not because of what research they do or what treatments they support, it is because they have been invaluable to helping me and my family through some pretty tough times. And for that I wish to give back something, the other objective is to raise awareness for M.E and in my opinion I have succeeded in doing both and I am proud of my achievements.