Sunday, 12 June 2011

'Voices From The Shadows' Trailer

One of the best books I've read, in terms of really expressing what life is like for people with severe ME, is Lost Voices From a Hidden Illness, which tells the stories of many different people with ME, & their friends, families, and carers. It's beautifully made, looking very much like a coffee table book, illustrated with images of those telling the stories - each picture telling as much of a story as the actual text. It was produced in conjunction with Invest in ME, one of the leading UK charities for ME. If you have ME, or care for someone who has, I highly recommend investing in a copy of this book and passing it around to friends and family to help them understand more about what you're going through!

I found out this week that coming soon is a 'film sequel' to Lost Voices - Voices From The Shadows. I wanted to share the trailer with you here. I'm quite excited about this film, and have high hopes that they will yet again produce a powerful tool for ME advocacy and awareness!

Voices from the Shadows Trailer from Josh on Vimeo. describes the film in the following way :

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‘Voices from the Shadows’ (is) a documentary bearing witness to the devastating consequences of psychiatric prejudice and medical ignorance about one of the most prevalent illness of the 21st Century.

Hidden away in darkened silent rooms for years, even decades, men, women and children are suffering a vicious injustice. Although shockingly ill, many are disbelieved, blamed and suffer medical neglect and even abuse by professionals. Deception and obfuscation have been used to deny the horror of their plight.

The isolation imposed by this severe illness means that the daily reality of these sufferers lives remains invisible. They are too ill to make their voices heard, and few professionals are willing to risk damaging their careers by speaking out to protect them.

Biomedical research has been stifled, so prejudice and misinformation have become widespread. Irrevocable harm is still being caused by inappropriate ‘treatment’. At last international research is highlighting this travesty, but in the UK it could be many, many years before change occurs. Meanwhile, lives are being destroyed and children and young people are particularly vulnerable.

This is a profoundly moving, poignant and disquieting film by two patient advocates/carers. It shows the love, enduring courage and determination of those who bravely strive to be heard as they fight for health and respect.

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I'd love to hear your reply and I know it'll be valued by other readers too! I always try to respond, please just be aware that it can take me some time to find the energy to do so as I've been particularly ill recently and struggling to get online. Thanks for reading! :)



  1. Excessive use of drugs, be it prescription drugs or street drugs cause undue harm to one’s body. The pills that your doctor has prescribed strictly for you if taken by someone else will not only produce the opposite result but might also be the cause of addiction. Substance abuse in any form is dangerous. It has lead to adverse side effects, and leading to death more often than not. It might just start with a sniff at a frat party. But this single sniff will be the password to unlock a world full of uncertainty and painful existence.

  2. we have a website for the film now: . thanks