Thursday, 12 January 2012

The Cupboard is Bare....? (Welfare Reform)

I wanted to bring your attention to a post recently made by Matthew on his blog, Indigo Jo Blogs, regarding the reforms to Disability Living Allowance which are about to be pushed through by the government. His feelings on the subject very much mirror my own.

The government state that there is 'no alternative' to making cuts to DLA ... yet when you look below the surface of their proposed reform, the problems are immediately evident - both (more obviously) to the quality of life for people affected by this reform, and (less obviously) for the future financial security of the country. Cutting benefits for disabled and chronically sick people will inevitably cause costs elsewhere to shoot up, potentially costing the country more than the cuts will 'save'. This is ignoring the fact that the disability benefits are the least affected by fraud, (According to the DWP's own statistics, only 0.5% of DLA claims are in fact fraudulent!!!!) and therefore are the least needing of reform in the first place!!!

Matthew says it all so much better than me in my current massively fogged state, so I'd refer you to his post ... excerpt below.

Excerpt from The Mail, Gerada, & The Alternative to DLA

My main reason for writing this, though, is to explain why disability benefits are not something we can just do away with by saying “the cupboard is bare” or “we can’t afford it” ... next time you hear a Tory (or Lib Dem) politician tell you “there is no alternative”, remember that there in fact is — wholesale re-institutionalisation. Only, the buildings have been either demolished or sold off, and building new ones will cost an awful lot of money. Caring for people with disabilities or the chronically ill in nursing homes or long-stay hospitals costs more than supporting them to live at home, and is less satisfactory for them as it imposes an institutional lifestyle, even if it does not lead to outright abuse (which it sometimes does). There is, in fact, no way to reduce the disability budget without imposing a lot of extra bureaucracy, a huge institutional care burden, or a lot of suffering (and manifestations such as public beggary) which would prove politically intolerable.


You may also want to follow the #SpartacusReport hashtag feed on Twitter, regarding the report just released by a group of disabled people, based on freedom of information requests, showing that the governments claims that the disabled community was supportive of their welfare reforms, was actually a misrepresentation of the truth. You can read an easy read copy of the Spartacus Report, officially known as the Responsible Reform Report: here.

I'm so thankful to, and proud of, the people who produced this report, and who have done such an amazing job of getting it into the public eye! Two of the main helpers have actually been hospitalised by the effort this has cost them, and several are now extremely ill. It was a marathon and amazing effort by a group of very sick and disabled people, who are amazing activists for our cause!!! I've embedded a video below, posted on Diary of a Benefit Scrounger, asking for our support in keeping the Spartacus report in the public eye, because so many of the team who put this report together have become too ill to continue working on it at this time.




Today I heard that the Lords voted, yesterday, to overturn the one-year time limit to contributory Employment and Support Allowance proposed by the government - this is a major victory for all disabled people in the UK!! Please check out today's post on Diary of a Benefit Scrounger for the latest updates to the Spartacus Report Cause, and info on what you can do to help. :)




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Sunday, 1 January 2012

An Old Year Gone, a New Year Begun!

¸.•°˜”*°•.¸☆★☆¸.•°*”˜˜”*°•.¸☆★☆¸.•°*”˜”*°•.¸


I just wanted to take a brief moment to send some new year thoughts the way of you all, my readers & friends.


This has been a difficult and challenging year for me in so many ways, to say the least, but there has been an astonishing saving grace - my blossoming friendships with all of you!! I couldn't begin to know just how hard this year would've been had the ME & chronic illness community not opened it's arms, welcomed me in, and supported me through each of the many, many bumps in the road. (not to mention allowing me the privilege of doing the same for many of you!!) I honestly feel that all I've learned in the last 15yrs, of living from day to day, relying always on hope to strengthen me, might have fallen away if I hadn't had this grounding, and rooting, in our community.



I feel like I've found a new family, & it was the perfect timing, the perfect solution. It's been a long time since I felt so understood and accepted ... and whilst it's kind of a sad sign of our time, that so few of us find that support in our homes, families, work and social groups, I think it's incredible and rather wondrous that people in so much need themselves regularly take the time to encourage, support and love others in need!!!



If there's one resolution most of us probably need to make this year, it's to see the good, the selflessness, the strength and the courage in ourselves and be proud of it! We may be sick & disabled, we may lead very limited lives, society as a whole may think we have little to offer - but darn it, they're wrong!!!! We have so much to give. We are of priceless value, each of us completely and totally unique! So take a moment to look in the mirror, and see the real you - not the you society chooses to see - and be proud of, and yes, even love yourself!!!

"Be Yourself. Everyone Else is Taken!"
~ Oscar Wilde ~


Love who you are! Image copyrighted to Anahata Katkin - click here to view her site!


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Friday, 16 December 2011

Hope and Happiness Within the Storm....?

I've shared videos by Daisy before, which are always really inspiring and moving. She really knows how to straight talk, and how to talk from the heart in a way that can really reach people and show them the reality of the lives we lead, normally hidden away from view.

This one had quite a significant affect on me. I've really been struggling to cope emotionally recently. It's not really so much the disease that's been getting me down - though of course that's always a factor. It's more everything surrounding it. All the battles over healthcare, benefits, rights. All the prejudice, ignorance and hatred towards us. The way the system just doesn't 'fit' to our needs, and how much sicker that can end up making us. (Example, no GP home visits despite being bedbound) Hope can sometimes be extremely elusive when you're stuck in the middle of all that, at the same time as dealing with the daily pain of being seriously ill, and everything that brings.

Daisy, I'm sure, has as many bad days as me. I'm sure she has times where she just can't find the will to fight for hope. But like I have again and again during the course of my illness, she eventually fights her way back. In this video, created for the 'Britain in a Day' BBC project, she talks about finding a way to find happiness & beauty inside of this horrible, difficult bubble we live in. Coming from someone so young, (17) that almost makes an even stronger impact than it would from an adult. And she's right ... it really does come down to finding that 'do or die' attitude, to working our butts off to find what small happinesses and controls that we possibly can in our daily lives. And to not let all our possible futures cloud the present too much. I need to re-learn that ... and I sort of feel like this (and a couple of other things that have happened lately - see my last post, 'Can we Transform Pain & Despair into Beauty') are maybe a turning point to drag myself back up to a place of coping.



There can be beauty even in massive destruction!


So, here's Daisy's video. Share on, wherever and with whoever you can!!!




But living a life of regret would have kept me looking backwards, rather than forwards. Hope is forward leaning. It’s the ripple of energy that trusts there are resources enough to live into the future. I had to focus on what I could do, not what I could not.
~ Julie Neraas ~


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Friday, 2 December 2011

Can we Transform Pain and Despair into Beauty?

A few nights ago, my carer and I watched the movie 'Another Earth'. There's a scene in the movie that's stayed with me since. One of the main characters is telling a story to the other main character, who is in a great deal of pain in more ways than just the physical. (clip embedded below but I'll give a text version for those who can't view the video.)

The story is of a cosmonaut who is all alone in his space capsule, looking down at the curvature of the Earth, and is lost in that beautiful moment. But then a tap, tap, tap starts somewhere inside the capsule. He tries to stop it but cannot. Days go by, like torture, and he now knows that this repetitive sound would break him. Would drive him crazy before he will reach his destination.

She begins to tap on the table with a spoon, comparing her tapping to that inside the cosmonaut's capsule. The cosmonaut realised that his only chance is to fall in love with the sound. To, rather than let the repetitive tap be annoying, instead perceive it as music. So he shuts his eyes, goes into his imagination. Then he opens them, and he doesn't hear tapping anymore. He hears music! And throughout the rest of his journey, he floats through space in total peace and bliss!




I was watching this and wondering how much it could be applied to the things that pull us down, causing us pain, illness, & other struggles. Is it possible that we could make music and beauty from our pain? Could we, somehow, turn a switch in our brains that helps us to see things a different way?? Not a healing, because who can stop a storm in it's path? (excepting God) More ... to still be living with all the same pain we were only moments before - but to see it and feel it.... experience it differently, somehow?


Image of The Eye of a storm, as seen from space!


I don't yet know the answer ... but I suspect that I would rather like to find out! I haven't been in a good place physically or emotionally recently. I want to climb out of it but it just seems impossible right now. I wish I could find a way to make it feel.... just not quite this bad, you know? To find comfort and rest within the turmoil of a storm of pain. To give myself an eye in that storm to wait it out for however long it lasts? Right now I feel like I'm living in the middle of a huge despair tornado, so I really would love for this to be possible! I do believe the brain, especially when combined with hope, is an amazing thing, capable of so much more than we know. Maybe it is possible to find a way to change our perception or our perspective! After all ... if you're on the inside of the storm pictured above, it would seem ugly and violent in the extreme, not to mention completely unforgiving. From above, though, in space, it's breathtakingly beautiful!!!

Oooh! Didn't I just get all meta-physical on you!! ;)

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I'd love to hear your reply and I know it'll be valued by other readers too! I always try to respond, please just be aware that it can take me some time to find the energy to do so as I've been particularly ill recently and struggling to get online. Thanks for reading! :)


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