tag:blogger.com,1999:blog-827037574571244529.post961691472588389901..comments2023-05-17T11:25:16.556-07:00Comments on The Thing With Feathers: Terrifying Tilt Table Test Tomorrow!Susannahhttp://www.blogger.com/profile/04706238776151154062noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-827037574571244529.post-52067728083905679562011-10-16T02:42:37.854-07:002011-10-16T02:42:37.854-07:00Ugh, bugger about your test. And yeah, for me the ...Ugh, bugger about your test. And yeah, for me the test wasn't /that/ bad, but it didn't actually show anything up. With me it's not actually POTS (we think), but I faint all the time - basically I'm at risk of it whenever I'm standing up. So, yes, in the tilt test I fainted (because I was upright) but it was twenty minutes after the tilt actually happened (ie, was still during the test but fairly clearly a result of me standing, not a result of the changing angle) and I tried to explain to them that actually, I faint all the time without becoming grey, shaking, being unable to speak, barely able to see, unable to eat, etc...but of course I was too tired to explain! Mum was really angry with them about it.<br /><br />But definitely insist that Anna goes with you into the room next time. It's a reasonable adjustment, and she could always (for example) sit next to the door, so if they did have to recusitate you, she could go outside really quickly.Sparkshttps://www.blogger.com/profile/10137193006104957059noreply@blogger.comtag:blogger.com,1999:blog-827037574571244529.post-67192921681211984762011-10-15T21:14:19.251-07:002011-10-15T21:14:19.251-07:00Thanks so much Marsha & Sparks. :)
Yea Sparks...Thanks so much Marsha & Sparks. :)<br /><br />Yea Sparks, I know you're not exactly strapped down, really - it's just one of those triggers where I can't stop my brain from freaking out even though I know that I'm safe, in reality. <br /><br />I'm glad your test wasn't too horrible - that is reassuring. :) Yikes, your poor foot though!! Yea, it's a good point about making sure they understand the full reasons as to why it's affecting you in certain ways. I understand your signing the against medical advice form and getting out of there ... I was in hospital once and I couldn't cope with being on the open ward with all the busyness. I didn't go quite as far as leaving against medical advice, but I did push things through really quickly, and was discharged sometime around midnight, when really they wanted to keep me for another night. I don't think most people would understand that, but anyone with severe M.E. sure would!!!<br /><br /><br />I didn't have the tilt table test in the end, because their computer decided it wasn't going to play nice and wouldn't work. I posted an update here : <a href="http://www.thethingwithfeathers.me/2011/10/law-of-sod.html" rel="nofollow">The Law of Sod</a>Susannahhttps://www.blogger.com/profile/04706238776151154062noreply@blogger.comtag:blogger.com,1999:blog-827037574571244529.post-83706402631628980542011-10-14T03:08:49.366-07:002011-10-14T03:08:49.366-07:00I've had a tilt table test.
Re: the strapping ...I've had a tilt table test.<br />Re: the strapping down - if it's like the one I had, you're not 'strapped down' per se, it's more like straps across say your middle and your legs so that if you fall, there's something to break your fall. I was given a cushion for my head, my arms were free (although I was asked not to move around). As far as impossible physical challenges go (I was standing with a sprained ligament in my foot, it was about four hours before I'd normally be awake, and I can't remember the last time I was able to stand still for 45 mins...) it wasn't horrendous.<br /><br />Just be sure, afterwards, to have someone with you to explain to the nurses that the reason you're shaking, grey, can't speak, etc etc, isn't actually because of a positive result, it's because of your ME. They wanted me to stay for an hour afterwards, and eat something, and I could barely understand them. My Mum had to bully them into letting me go, and believe it or not I had to sign an against medical advice form!Sparkshttps://www.blogger.com/profile/10137193006104957059noreply@blogger.comtag:blogger.com,1999:blog-827037574571244529.post-4647629769689106052011-10-13T18:39:52.482-07:002011-10-13T18:39:52.482-07:00FYI: I'm @CommunityBldr on TwitterFYI: I'm @CommunityBldr on TwitterMarshahttps://www.blogger.com/profile/18118110725441525921noreply@blogger.comtag:blogger.com,1999:blog-827037574571244529.post-82134086311911587842011-10-13T18:39:19.538-07:002011-10-13T18:39:19.538-07:00I wish you luck. Great blog! Much of what you sai...I wish you luck. Great blog! Much of what you said rings true for me too. Hope all goes much better than you even hope for; sending you good thoughts for health and hope.Marshahttps://www.blogger.com/profile/18118110725441525921noreply@blogger.com