tag:blogger.com,1999:blog-827037574571244529.post6108067345813141905..comments2023-05-17T11:25:16.556-07:00Comments on The Thing With Feathers: How should we deal with this latest psychiatrist & media attack on M.E. patients??Susannahhttp://www.blogger.com/profile/04706238776151154062noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-827037574571244529.post-36253305831380117762011-02-20T16:38:23.793-08:002011-02-20T16:38:23.793-08:00Thanks hon! :)
It's hard to keep your eye on ...Thanks hon! :)<br /><br />It's hard to keep your eye on that truth sometimes, when people are playing magic tricks with it, isn't it? Sigh. <br /><br />It's such a terrible situation where patients have to fight for their own rights, as well as fighting their own bodies. It seems so terribly, terribly wrong. When I think of all the people who've been sectioned, or forced into treatments that made them relapse into a much worse condition - and how long it's been going on for...!!!!<br /><br />I've spent the last few years alternately unable to follow, then unwilling to follow, the politics - but recently started to dip my toes back into it - and found that basically nothing whatsoever has changed for the better. In fact, if anything, the last year has put us back 10 years. Grrr!!<br /><br />Thanks for your comment - it's nice to meet you!! :)Susannahhttps://www.blogger.com/profile/04706238776151154062noreply@blogger.comtag:blogger.com,1999:blog-827037574571244529.post-462531766079605392011-02-20T05:28:17.768-08:002011-02-20T05:28:17.768-08:00Great blogpost. I was, just like you, furious abou...Great blogpost. I was, just like you, furious about the whole PACE trial results and of course about the deeply insulting articles in all those newspapers and more importantly, in all journals/magazines for doctors. To us - as active ME pts who keep an eye on the honesty and integrity of research - it is insulting, but we do know the thruth about those results: they are rubbish. Unfortunately, the uninitiated, but also the doctors (who have no time to make sure every research is done correctly) don't know about all the flaws of this research and that makes us to have to fight again to put it all right again. <br /><br />To me, it's horrible and disgusting that people who call themselves researchers/professors deliver such bad research and then just happily say they have found the cure to ME/CFS. <br /><br />Michelle<br />The NetherlandsUnknownhttps://www.blogger.com/profile/06575722398580184753noreply@blogger.com